Batten Disease Support and Resource Association
Resource Details
BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA is now the largest support and research organization dedicated to Batten disease in North America. BDSRA believes that to effectively unravel the mysteries of Batten disease, the worlds of medical science, research, and families must work together toward a common goal: discover treatments and cures while assuring a better quality of life for those living with the disease.
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DISCLAIMER: The information and resources listed on this site are for general informational and educational purposes only. They are not intended to be, and should not be interpreted as legal, financial, or medical advice, and are not meant to replace the advice or counsel of a qualified professional. The inclusion of any third-party resources or links does not imply endorsement or guarantee of any organization, program, service, information, or outcome. The information and resources do not constitute any medical diagnosis or treatment recommendations. Please consult your child’s physician or other trusted medical professional before making any medical care decisions for yourself or your child.
©2026 Ronald McDonald House® Northeast Ohio. All Rights Reserved.
The following trademarks are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House, Ronald McDonald House Logo, Ronald McDonald Family Room and Ronald McDonald Care Mobile.
Ronald McDonald House® Northeast Ohio is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Northeast Ohio are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Northeast Ohio EIN is 34-1269123. A copy of the Ronald McDonald House Northeast Ohio determination letter is available upon request.
Looking for more?
Search the full resource database.
DISCLAIMER: The information and resources listed on this site are for general informational and educational purposes only. They are not intended to be, and should not be interpreted as legal, financial, or medical advice, and are not meant to replace the advice or counsel of a qualified professional. The inclusion of any third-party resources or links does not imply endorsement or guarantee of any organization, program, service, information, or outcome. The information and resources do not constitute any medical diagnosis or treatment recommendations. Please consult your child’s physician or other trusted medical professional before making any medical care decisions for yourself or your child.
©2026 Ronald McDonald House® Northeast Ohio. All Rights Reserved.
The following trademarks are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House, Ronald McDonald House Logo, Ronald McDonald Family Room and Ronald McDonald Care Mobile.
Ronald McDonald House® Northeast Ohio is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Northeast Ohio are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Northeast Ohio EIN is 34-1269123. A copy of the Ronald McDonald House Northeast Ohio determination letter is available upon request.
Looking for more?
Search the full resource database.
DISCLAIMER: The information and resources listed on this site are for general informational and educational purposes only. They are not intended to be, and should not be interpreted as legal, financial, or medical advice, and are not meant to replace the advice or counsel of a qualified professional. The inclusion of any third-party resources or links does not imply endorsement or guarantee of any organization, program, service, information, or outcome. The information and resources do not constitute any medical diagnosis or treatment recommendations. Please consult your child’s physician or other trusted medical professional before making any medical care decisions for yourself or your child.
©2026 Ronald McDonald House® Northeast Ohio. All Rights Reserved.
The following trademarks are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House, Ronald McDonald House Logo, Ronald McDonald Family Room and Ronald McDonald Care Mobile.
Ronald McDonald House® Northeast Ohio is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Northeast Ohio are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Northeast Ohio EIN is 34-1269123. A copy of the Ronald McDonald House Northeast Ohio determination letter is available upon request.