Batten Disease Support and Resource Association
Resource Details
BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA is now the largest support and research organization dedicated to Batten disease in North America. BDSRA believes that to effectively unravel the mysteries of Batten disease, the worlds of medical science, research, and families must work together toward a common goal: discover treatments and cures while assuring a better quality of life for those living with the disease.
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DISCLAIMER: The resources listed on this site are not meant to replace medical advice or the consultation of your child’s physician or care team. Please consult a trusted medical professional before making any medical care decisions for yourself or your child.
The following trademarks used herein are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House Charities, Ronald McDonald House Charities Logo, Ronald McDonald House, Ronald McDonald Family Room, and Ronald McDonald Care Mobile.
Ronald McDonald House Charities® of Northeast Ohio, Inc. is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Charities® of Northeast Ohio, Inc. are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Charities® of Northeast Ohio, Inc. EIN is 34-1269123. A copy of the Ronald McDonald House Charities® of Northeast Ohio, Inc. determination letter is available upon request.
©2026 Ronald McDonald House of Northeast Ohio, Inc. All Rights Reserved.
Looking for More?
Search the full resource database.
DISCLAIMER: The resources listed on this site are not meant to replace medical advice or the consultation of your child’s physician or care team. Please consult a trusted medical professional before making any medical care decisions for yourself or your child.
The following trademarks used herein are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House Charities, Ronald McDonald House Charities Logo, Ronald McDonald House, Ronald McDonald Family Room, and Ronald McDonald Care Mobile.
Ronald McDonald House Charities® of Northeast Ohio, Inc. is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Charities® of Northeast Ohio, Inc. are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Charities® of Northeast Ohio, Inc. EIN is 34-1269123. A copy of the Ronald McDonald House Charities® of Northeast Ohio, Inc. determination letter is available upon request.
©2026 Ronald McDonald House of Northeast Ohio, Inc. All Rights Reserved.
Looking for More?
Search the full resource database.
DISCLAIMER: The resources listed on this site are not meant to replace medical advice or the consultation of your child’s physician or care team. Please consult a trusted medical professional before making any medical care decisions for yourself or your child.
The following trademarks used herein are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House Charities, Ronald McDonald House Charities Logo, Ronald McDonald House, Ronald McDonald Family Room, and Ronald McDonald Care Mobile.
Ronald McDonald House Charities® of Northeast Ohio, Inc. is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Charities® of Northeast Ohio, Inc. are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Charities® of Northeast Ohio, Inc. EIN is 34-1269123. A copy of the Ronald McDonald House Charities® of Northeast Ohio, Inc. determination letter is available upon request.
©2026 Ronald McDonald House of Northeast Ohio, Inc. All Rights Reserved.