National Gaucher Foundation - E-Pal Connections Program
Resource Details
Having a rare disease like Gaucher disease can be isolating, especially for those who possess few opportunities to connect with others sharing similar experiences due to geographic proximity and/or obstacles in utilizing various technologies. In an effort to facilitate communication and develop relationships, the E-Pal Connections program has been created with our younger community members in mind.
The program will enable parents to facilitate connecting their children and teens with peers who also have Gaucher disease and to connect through a communication method of choice, such as FaceTime, Skype and email. This program is geared towards children and teens ages 5 – 17.