National Gaucher Foundation’s CARE Programs
Resource Details
It’s no secret that living with Gaucher disease can be pricy. Enzyme replacement therapy (ERT), the mainstay of Gaucher disease management, runs between $139,000 to more than $300,000 each year(1). Patients often encounter unexpected expenses, including fees for emergency services and travel costs, during the course of their treatment.
Many people living with Gaucher disease face a tremendous financial burden while trying to maintain optimal health. It’s possible to live a normal life with Gaucher disease, but patients must receive appropriate treatment on a consistent basis. Almost 25 years ago, NGF implemented two programs – CARE and CARE+ – to help people living with Gaucher disease pay for some of the expenses incurred during the course of diagnosis and treatment.