National Organization for Rare Disorders (NORD) - Rare Disease Organization Database
Resource Details
NORD seeks to increase awareness of all rare diseases and to assist the organizations serving patients and families affected by specific rare diseases. The site answers FAQ for patients, the latest on clinical trials, and provides disease guides to share with health care providers.
In the U.S., a disease is considered rare if it is believed to affect fewer than 200,000 Americans. There are approximately 6,800 such diseases, according to the National Institutes of Health (NIH). While each disease is rare, when considered together they affect nearly 30 million Americans or almost 1 in 10 people. There are certain challenges that all patients and families affected by rare diseases share.
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DISCLAIMER: The information and resources listed on this site are for general informational and educational purposes only. They are not intended to be, and should not be interpreted as legal, financial, or medical advice, and are not meant to replace the advice or counsel of a qualified professional. The inclusion of any third-party resources or links does not imply endorsement or guarantee of any organization, program, service, information, or outcome. The information and resources do not constitute any medical diagnosis or treatment recommendations. Please consult your child’s physician or other trusted medical professional before making any medical care decisions for yourself or your child.
©2026 Ronald McDonald House® Northeast Ohio. All Rights Reserved.
The following trademarks are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House, Ronald McDonald House Logo, Ronald McDonald Family Room and Ronald McDonald Care Mobile.
Ronald McDonald House® Northeast Ohio is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Northeast Ohio are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Northeast Ohio EIN is 34-1269123. A copy of the Ronald McDonald House Northeast Ohio determination letter is available upon request.
Looking for more?
Search the full resource database.
DISCLAIMER: The information and resources listed on this site are for general informational and educational purposes only. They are not intended to be, and should not be interpreted as legal, financial, or medical advice, and are not meant to replace the advice or counsel of a qualified professional. The inclusion of any third-party resources or links does not imply endorsement or guarantee of any organization, program, service, information, or outcome. The information and resources do not constitute any medical diagnosis or treatment recommendations. Please consult your child’s physician or other trusted medical professional before making any medical care decisions for yourself or your child.
©2026 Ronald McDonald House® Northeast Ohio. All Rights Reserved.
The following trademarks are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House, Ronald McDonald House Logo, Ronald McDonald Family Room and Ronald McDonald Care Mobile.
Ronald McDonald House® Northeast Ohio is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Northeast Ohio are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Northeast Ohio EIN is 34-1269123. A copy of the Ronald McDonald House Northeast Ohio determination letter is available upon request.
Looking for more?
Search the full resource database.
DISCLAIMER: The information and resources listed on this site are for general informational and educational purposes only. They are not intended to be, and should not be interpreted as legal, financial, or medical advice, and are not meant to replace the advice or counsel of a qualified professional. The inclusion of any third-party resources or links does not imply endorsement or guarantee of any organization, program, service, information, or outcome. The information and resources do not constitute any medical diagnosis or treatment recommendations. Please consult your child’s physician or other trusted medical professional before making any medical care decisions for yourself or your child.
©2026 Ronald McDonald House® Northeast Ohio. All Rights Reserved.
The following trademarks are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House, Ronald McDonald House Logo, Ronald McDonald Family Room and Ronald McDonald Care Mobile.
Ronald McDonald House® Northeast Ohio is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Northeast Ohio are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Northeast Ohio EIN is 34-1269123. A copy of the Ronald McDonald House Northeast Ohio determination letter is available upon request.