Pediatric Palliative Care Self-Advocacy Toolkit
Resource Details
A child or adolescent with medical complexity and their families often face challenges where self-advocacy becomes important. Young people may not be able to advocate for themselves if they do not understand their illness or know how to express their wants and needs.
While it can be difficult to explain a diagnosis to a child, it is essential to do so in developmentally and age-appropriate ways in order for the child to process the information and begin to develop coping skills.
This toolkit is designed to help parents, caregivers, children, adolescents and teens on the advocacy journey.
Looking for More?
Search the full resource database.
DISCLAIMER: The resources listed on this site are not meant to replace medical advice or the consultation of your child’s physician or care team. Please consult a trusted medical professional before making any medical care decisions for yourself or your child.
The following trademarks used herein are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House Charities, Ronald McDonald House Charities Logo, Ronald McDonald House, Ronald McDonald Family Room, and Ronald McDonald Care Mobile.
Ronald McDonald House Charities® of Northeast Ohio, Inc. is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Charities® of Northeast Ohio, Inc. are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Charities® of Northeast Ohio, Inc. EIN is 34-1269123. A copy of the Ronald McDonald House Charities® of Northeast Ohio, Inc. determination letter is available upon request.
©2026 Ronald McDonald House of Northeast Ohio, Inc. All Rights Reserved.
Looking for More?
Search the full resource database.
DISCLAIMER: The resources listed on this site are not meant to replace medical advice or the consultation of your child’s physician or care team. Please consult a trusted medical professional before making any medical care decisions for yourself or your child.
The following trademarks used herein are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House Charities, Ronald McDonald House Charities Logo, Ronald McDonald House, Ronald McDonald Family Room, and Ronald McDonald Care Mobile.
Ronald McDonald House Charities® of Northeast Ohio, Inc. is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Charities® of Northeast Ohio, Inc. are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Charities® of Northeast Ohio, Inc. EIN is 34-1269123. A copy of the Ronald McDonald House Charities® of Northeast Ohio, Inc. determination letter is available upon request.
©2026 Ronald McDonald House of Northeast Ohio, Inc. All Rights Reserved.
Looking for More?
Search the full resource database.
DISCLAIMER: The resources listed on this site are not meant to replace medical advice or the consultation of your child’s physician or care team. Please consult a trusted medical professional before making any medical care decisions for yourself or your child.
The following trademarks used herein are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House Charities, Ronald McDonald House Charities Logo, Ronald McDonald House, Ronald McDonald Family Room, and Ronald McDonald Care Mobile.
Ronald McDonald House Charities® of Northeast Ohio, Inc. is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Charities® of Northeast Ohio, Inc. are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Charities® of Northeast Ohio, Inc. EIN is 34-1269123. A copy of the Ronald McDonald House Charities® of Northeast Ohio, Inc. determination letter is available upon request.
©2026 Ronald McDonald House of Northeast Ohio, Inc. All Rights Reserved.