Pediatric Palliative Care Self-Advocacy Toolkit
Resource Details
A child or adolescent with medical complexity and their families often face challenges where self-advocacy becomes important. Young people may not be able to advocate for themselves if they do not understand their illness or know how to express their wants and needs.
While it can be difficult to explain a diagnosis to a child, it is essential to do so in developmentally and age-appropriate ways in order for the child to process the information and begin to develop coping skills.
This toolkit is designed to help parents, caregivers, children, adolescents and teens on the advocacy journey.
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DISCLAIMER: The information and resources listed on this site are for general informational and educational purposes only. They are not intended to be, and should not be interpreted as legal, financial, or medical advice, and are not meant to replace the advice or counsel of a qualified professional. The inclusion of any third-party resources or links does not imply endorsement or guarantee of any organization, program, service, information, or outcome. The information and resources do not constitute any medical diagnosis or treatment recommendations. Please consult your child’s physician or other trusted medical professional before making any medical care decisions for yourself or your child.
©2026 Ronald McDonald House® Northeast Ohio. All Rights Reserved.
The following trademarks are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House, Ronald McDonald House Logo, Ronald McDonald Family Room and Ronald McDonald Care Mobile.
Ronald McDonald House® Northeast Ohio is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Northeast Ohio are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Northeast Ohio EIN is 34-1269123. A copy of the Ronald McDonald House Northeast Ohio determination letter is available upon request.
Looking for more?
Search the full resource database.
DISCLAIMER: The information and resources listed on this site are for general informational and educational purposes only. They are not intended to be, and should not be interpreted as legal, financial, or medical advice, and are not meant to replace the advice or counsel of a qualified professional. The inclusion of any third-party resources or links does not imply endorsement or guarantee of any organization, program, service, information, or outcome. The information and resources do not constitute any medical diagnosis or treatment recommendations. Please consult your child’s physician or other trusted medical professional before making any medical care decisions for yourself or your child.
©2026 Ronald McDonald House® Northeast Ohio. All Rights Reserved.
The following trademarks are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House, Ronald McDonald House Logo, Ronald McDonald Family Room and Ronald McDonald Care Mobile.
Ronald McDonald House® Northeast Ohio is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Northeast Ohio are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Northeast Ohio EIN is 34-1269123. A copy of the Ronald McDonald House Northeast Ohio determination letter is available upon request.
Looking for more?
Search the full resource database.
DISCLAIMER: The information and resources listed on this site are for general informational and educational purposes only. They are not intended to be, and should not be interpreted as legal, financial, or medical advice, and are not meant to replace the advice or counsel of a qualified professional. The inclusion of any third-party resources or links does not imply endorsement or guarantee of any organization, program, service, information, or outcome. The information and resources do not constitute any medical diagnosis or treatment recommendations. Please consult your child’s physician or other trusted medical professional before making any medical care decisions for yourself or your child.
©2026 Ronald McDonald House® Northeast Ohio. All Rights Reserved.
The following trademarks are owned by McDonald’s Corporation and its affiliates; McDonald’s, Ronald McDonald House, Ronald McDonald House Logo, Ronald McDonald Family Room and Ronald McDonald Care Mobile.
Ronald McDonald House® Northeast Ohio is recognized as a public charity under Internal Revenue Code section 509(a) and has 501(c)(3) status. Donations to Ronald McDonald House Northeast Ohio are deductible. Donors should consult their tax advisor for questions regarding deductibility. The Ronald McDonald House Northeast Ohio EIN is 34-1269123. A copy of the Ronald McDonald House Northeast Ohio determination letter is available upon request.