Starfolio Resource Notebook
Resource Details
When your child is diagnosed with a brain tumor, you’ll have lots of questions. Answers may be hard to find. The Starfolio Resource Notebook is designed with you in mind and provides information and practical resources to help you navigate these challenging days.
In the Starfolio, you’ll find:
A wealth of reliable information on childhood brain tumors
Tools to help you communicate with your healthcare team
Templates to help you manage and organize your child's care
Resources to help you as your child returns to school
Information about how to navigate your journey at each stage
Words of encouragement from other families who have walked before you
Children with brain tumors are Stars to the PBTF, so we’ve named this resource the Starfolio in their honor. One of those Stars is Thea Danze. Her mom, Trisha, started the Pennsylvania-based nonprofit Thea’s Star of Hope, which helped fund the Starfolio.